Thursday, January 25, 2007
Thurs Jan 25th
I was able to get a surgery date scheduled for the 28th of February. I still don't know what surgery I will end up having but it is nice to have a date so that my other sister, Amy, could make travel plans to be here to help out. I also found out that I have to wait 6 weeks after surgery to start radiation. Then do 6 weeks of radiation. Nothing like dragging out the process. Jon and I were thinking about getting away for a few days in May, but I guess we will have to wait.
My eyelashes are all gone. Total bummer. I could deal with my eyebrows since they were practically non existent to begin with but my thick, long, big eyelashes are another story. I went with my sister to get some false ones yesterday that look pretty good but itch on my skin. It looks pretty funny not to have any hair, eyebrows, or lashes.
I got a gift subscription to netflix for Christmas from my work that has been awesome. It is so convenient to just be able to pick out movies online and have them come in the mail. They have been fun to watch while I am feeling down and out.
I went in for Herceptin yesterday. It is nice to go in and be done in about an hour. Much nicer than camping out there for 1/2 the day. My sister and I met my parents and brother Mason last night to go out to eat. Our friends Vernon and Kira watched my kids so we could have an adult night out. It was really nice. I have my breast MRI on Friday afternoon and then I don't meet with my surgeon until the 8th. I am taking Jon out on Saturday for his belated birthday celebration. We are going to see the Music Man at the Carousel Dinner Theatre in Fort Collins. Hopefully it is fun.
My friend Aislinn is hosting a Layers Clothing Open House Party for me next Thursday night from 6:30pm to 8:30pm. If anyone is interested in ordering something but won't be able to make it you can look at their website at www.layersclothing.com and let me know via email at elizajonbrock@msn.com or if you need directions to my house and are interested in coming you can also email me. I love their shirts and they are having a big sale right now so that is a bonus. All the proceeds will go towards my medical bills. Hope everyone has a good weekend!
Friday, January 19, 2007
Friday Jan 19th
Well the good news is I had my last FEC treatment on Wednesday, but the bad news is that it has been a horribly long week. Jon had to go out of town this week to work in Salida. He left really early Monday morning and just got home this afternoon. Olivia was really sick on Friday night with what we though was food poisoning. She threw up about 5 times during the night and then was fine by Saturday afternoon.
Monday I had my appointment with Dr. M to talk more about surgery options and the rest of my regiment. No matter what way we decide to go with surgery I have to have 6 weeks, yes, 6 weeks of radiation. Monday through Friday with the weekends off. That was a bit longer than I had anticipated. I had all sorts of questions for her about surgery. Since we had always planned on doing the mastectomy from the beginning that is what I have been preparing myself for and with this other option I am having my doubts. She has always said, "Eliza your young and we want to be really aggressive in trying to get rid of this." So that has also been my mind set. I would just hate to do something less than aggressive the first time and then have it come back and say man if I just would have gotten rid of this thing in the first place....yada yada. She did say that it was still my choice to do whatever surgery that I would feel the most comfortable with and that it would probably be best to make a final determination after I did my final breast MRI next week and then meet with my surgeon Dr. Chiavetta. I left feeling kinda defeated thinking that I would be leaving this appointment with a definite answer on "the next step". All in good time I suppose. Also I found out at my appointment that I would have to start taking a prescription for progesterone since I can't seem to stop my period. (lovely)
Needless to say Olivia must have gotten a bug because by Monday night I was sicker than a dog also. After going through chemo for 6 months and not throwing up I defiantly got my fill in on Monday night. If I wasn't on the toilet every hour I was hanging over it. YUCK! Good thing my mom loves me and lives close by. She came to my rescue on Tuesday morning and stayed with me and the kids until my sister Toni got back into town on Tuesday afternoon. When I called the doctor to ask if I still had to do chemo the next day they unfortunately said yes, unless I was still throwing up. (I should have made myself throw up again that afternoon) Who knew that my last chemo would be my very hardest. I could hardly walk in the room without having the overwhelming urge to vomit all over the place from the smell. On top of the fact that the progesterone was supposed to make me stop my period it can make you a little "weepy". That's a nice way of putting it in my book. The morning started off with someone across the room making a comment about how this was her 4th time with cancer........REALLY!?!? Apparently that made her the president of the club. Super. Is that now what I have to look forward to, counting down the years until I have to go through all this crap all over again? I am sure you can all see where the rest of that day went. It actually wasn't too horrible emotionally compared to Thursday. I did make it through the rest of Wednesday with the help of a lot of Ativan (anti anxiety) medicine from my favorite nurse Judy. I just couldn't even stand to see my IV drip the red nasty medicine down into me. I had to cover up the line with the blanket. Also on my list of "can't stands" at the moment are ice chips. I have to eat ice chips during that infusion to slow down the blood flow to my mouth to prevent mouth sores. I never thought ice could also want to make you vomit. Well believe me it can. Good news was that I don't have to have any shots for white or red blood counts. After I had finished with my treatment I all of a sudden developed a fever and started shivering really bad. They think I could have developed an infection and so got the shivering under control and pumped me up with some benedryl. I went home and went straight to bed. Again thank goodness for my family and Jon's parents being her to help out with everything.
Thursday I got up and went to hydration with my sister Toni feeling surprisingly not nauseous for the first time in days. Odd. But okay I'll take it. When I got to hydration of course the nausea kicked right in. Again, super. I did meet this really nice girl that just started her treatment. She is the same age as me (sucks for us) but hopefully will be nice to get to know. We also sat with another older woman who decided to tell us all about how she was dealing with breast cancer and her sister had breast cancer and then about how some sweet little 4 year boy she was related to was killed recently by chasing his ball into the street.....Enter "weepy"emotional psycho Eliza. I am sorry but a person can only take so many depressing stories. Why can't people tell nice stories. There are also plenty of those out there, aren't there? Enter my hero nurse with some more Ativan. I couldn't stop crying the whole rest of the day. I tried to get into the bath and my hot water heater had gone out from the wind the night before. Hmmm, so much for the one thing that might make me feel better. Mom mom, sister, and I loaded up the kids and went to her house so I could take a bath and they could keep my children away from their crazed mother. My sister ended up coming back to my house with me last night to stay over and we watched some friends episode. Those will really bring up your mood. They are pretty funny. I am glad to say that that day is behind me.
Today I had hydration again and have been feeling pretty horrible, although not "weepy". I hope everyone else is finding the humor in that word. Today has proven to be quite uneventful, which is fine with me. Jon got home this afternoon and also found out that he gets to do the same thing next week. Delightful. I took a nap this afternoon and have been pretty much just lying around all evening. Olivia went over to grandma Mondy's house to have a sleepover with my other niece Caylee. She was pretty excited. No big news for us this weekend, probably just trying to recooperate. Jon's birthday is on Sunday but we are going to go out and celebrate next weekend when I am feeling better. I don't have my breast MRI until next Friday and then I meet with my surgeon on the 8th. Hopefully I can move that up a bit so I can get a surgery date nailed down. My sister Amy is going to try and fly out to help when I have surgery. Well that is about all the excitement I can handle for one week, so until next time.....
Wednesday, January 10, 2007
Wed Jan 10th
Otherwise I have just felt pretty tired and don't have much energy. My sister Toni has been here since Christmas to help out and it has been awesome. She comes over everyday and helps with the kids, laundry, or whatever needs to be done. We took the kids swimming yesterday at the Greeley family fun plex. It has a park area in the kids pool that has water squirting out of the equipment. They also have a lazy river pool. It was pretty fun for the kids. We had another round of snow last Friday and Jon couldn't make it to work. We are supposed to have snow for the next couple days again. The snow still hasn't melted here from our first huge blizzard before Christmas. It has been interesting trying to navigate around the neighborhoods.
My sister in law Brandy had her surgery yesterday to remove the tumor that was growing on her kidney. They ended up removing the mass and also removing the kidney. They will get the biopsy results back tomorrow. Hopefully everything is fine with her. I posted some more pictures of the kids and some other misc pictures from over the last few weeks on my snapfish link.
Ladies, it is also buddy check 9 day yesterday so everyone remember to do your self breast exams. Hope everyone is doing well!!
Tuesday, January 02, 2007
Tues Jan 2nd
It is official, I have lost all but one of my fingernails in the last week. That's hot, as Paris Hilton would say. I know, I would say back! I have really underestimated the convenience of having fingernails for pretty much my whole life. It makes things like scratching almost impossible. My hair is also growing back on some parts of my head. Yes, I have lost hair pretty much everywhere else on my body. Also hot! I am still torturing myself by shaving my legs at least once a week, even though I don't need to. I don't know what to say, except it helps me to feel normal. Besides I bet if I looked really closely I could find a hair or two there that needed to be shaved.......At least that is what I am saying to myself to justify the extra time and energy in the shower. Why bother checking, I am sure they are there. Right, moving on....... I am still feeling nauseous on and off through the day, so I am still taking my anti-nausea meds and trying to take it easy. My sister Toni is here for almost the whole month to help me out and we did all sorts of errands today and then relaxed for the afternoon. I have spent the last few days researching this new procedure that they are wanting to do for surgery. It is called wire localization and I explained it a bit in my last post. After reading more about it I have to go into the radiologist and have the wire placed before the surgery is done, meaning I am not under general anesthesia for it. If you remember my nightmare biopsy story with the radiologist you will understand why I have been taking my anti anxiety meds for the last 48 hours freaking out about the fact I have to be awake for yet another "minor procedure" as they would put it. Needless to say I am NOT excited about this but am still trying to weigh the pros and cons of everything. I go in for Herceptin tomorrow am. (wasn't I just there???) I feel like I need to start paying rent at the doctor's office. Although if it costs what they are charging me for chemo by the hour, it better be the Ritz. Speaking of which, I might put a suggestion in the box of my insurance company that they should start sending their patients on vacation to help relieve the stress of serious illnesses. I am sure it doesn't cost any more to go on vacation for a week than some of the out of control prescription costs!!
Friday, December 29, 2006
Fri Dec 29th
There were a few people that were asking me about my port, so I thought I would take a picture of it....



Monday, December 25, 2006
Tues Dec 26th
I received some bad news on Sunday about someone I see at Chemo every now and again. Randy was 16 and diagnosed with leukemia and then found out last month that he had relasped and could do nothing else to treat his cancer. He passed away on Saturday night. He was always so happy. It is so sad that he was so young and his life was claimed by this horrible disease. I wish his family peace during this time.
It was a white Christmas this year and that is pretty exciting. Haven't had one of those in a few years. I have really enjoyed that it feels like winter outside. We had someone do the 12 days of Christmas for us this year which was pretty fun. For those of you unfamiliar with this someone leaves little goodies for you on your door starting with 12 days before Christmas every night that correlates with the song the 12 days of Christmas. The kids had a fun time looking outside to see what was left at the door.
My sister Toni and her husband Doug were still able to make it here on Friday from Salt Lake and it has been fun to have all my brothers and sisters here. Doug shaved his head for me a few days before they got here. They were going to shave their dog Buddy's head too. That would have been hilarious. Toni is taking a leave of absence from work to help me out for the next month. She will stay through the 25th of January and my last bad treatment will be the 17th so that will be a huge help for me. What a great sister!
Christmas day we got up and headed straight for my parents house. Santa knew we were going over there so he dropped off all of our stockings over there...(pretty smart guy, less for mom to keep track of Christmas morning) Like I mentioned earlier all of my siblings and their spouses and families were at my parents house this year so we had a house - full. It was awesome. 13 adults and 10 kids. I loved it. Presents everywhere and all sorts of commotion. I can't think of anywhere else in the world I would have rather been. My sister Toni had bought these "bald wigs" for everyone and we took a family picture with all the baldies....

Wednesday, December 20, 2006
Wed Dec 20th
Friday, December 15, 2006
Friday Dec 15th
I went into do my Herceptin on Wednesday and that only took about an hour which is a nice switch from being there several hours on the regular treatment days. I also went down to the airport with my Mom and Dad to pick up my sister Amy and her kids. It was great to be able to see them.
Monday, December 11, 2006
Monday Dec 11
The bone pain is still ever present. I feel like I was hit by a train. My lower back (pelvis) is still the most uncomfortable but my ribs, shoulder blades, and bottom of my skull all hurt also. The nausea still comes in waves but it hasn't been constant. The nurse said that the bone pain can last up to 6 days so hopefully we are getting into the last few days.
On Saturday we had Jon's aunt and uncle John and Clara over for the afternoon to exchange gifts. They brought us a yummy honey baked ham for dinner and we really enjoyed getting the time to visit. My sister Amy and her kids are flying into Denver on Wednesday and will be here for a few weeks. We are so excited to see her.
Friday, December 08, 2006
Friday Dec 8
Wednesday I went in for my "FEC Chemo Cocktail" as us chemo regulars refer to it as. I was able to avoid my cytoxin headache this time by having that medication infused slower so that was one good point. My port still is tender and hurt somewhat to be accessed even though I had my emla cream on it so I opted to leave it "tapped" to go in for hydration on both Thursday and today. I wonder if that stupid thing will ever not bother me?? The downside to Chemo was my blood counts White count is at 3.5 and Red count is at 4.05. Since normal range for white starts at 4.1 I had to plan on taking the dreaded Neulasta shot the following day. Darn it! They give my body time to take on the Chemo for a day before the cells start reproducing and then give me the Neulasta shot the next day to start producing more White cells. My Red counts were down also but they didn't seem to be as worried about them. The rest of the Chemo process was fairly non eventful.
I also had an appointment with Dr. Medgeyesy yesterday. I just love her. I can't help but think I won the lottery in being led to this woman. She still wants to consult with my surgeon Dr. Chiavetta more about my options for surgery but would recommend me still doing a mastectomy on the right side. Due to not enough evidence of the way a tumor shrinks they are not sure if microscopic cancer seed cells would still be laying on the outer edges of where the tumor started out. She explained that if I were 60 and we were finding this she would feel that going in and trying to do a lumpectomy in the area where the breast clip is currently located along with a partial removal of lymph nodes under my arm would be a possibility and get me through another 20 years. Since I am so young she said if it were her she would elect to do the mastectomy. From her explanation of the "shrinking" process I feel pretty confident in saying that I concur with her opinion. (another movie line from catch me if you can) I still have questions about whether or not it is a good idea to go ahead and do a bilateral mastectomy since I still do I have a somewhat higher probability of getting cancer again on the left side but need to get some other questions answered from my surgeon, plastic surgeon, and also insurance company first and foremost. This crap ain't free :-) You are always having to get permission from someone unfortunately. I feel a little more clear about the path we are headed down for surgery but not any less anxious about it.
The rest of my day on Wednesday was pretty rough. Lots of nausea, but no throwing up. Thursday I went in and did hydration in the morning with Jon and Olivia. Olivia has been asking since day one when she gets to go to the doctor with me and since this way hydration and takes just over an hour and Dad came with us I thought it would be a good day for her to go. She brought her "church bag" and read books and colored with dad. She got to meet the nurses at the office and also hang out with Lanie and Karin again. Yesterday was Karin's last day of chemo, and Lanie finished her chemo about 2 weeks ago. YOU GO GIRLS!! Of course we took some pictures and I posted them up on the snapfish link on the side of the page that says "Eliza's Pictures". I also had to get that Neulasta shot yesterday. Olivia said "Don't worry I will hold your hand mom." Which she soon regretted when I was squeezing all her fingers together. Whoops. Those shots hurt though, darn it. I think she had a good time with her dad there to entertain her and I knew her curiosity was getting the best of her wondering what I did at the doctor's office all the time. Thursday was more of the same experiencing heavy nausea but no throwing up and my pelvis started to hurt. My mom did the oils on my feet and I was so relaxed I went right to bed a little after 9pm. Unfortunately my son was up about 6 times between the hours of 2am and 4:30am. What a weirdo. He kept waking up screaming like he was having bad dreams and then he decided that he had a cough, so I had to get up and get him cough medicine. Then I think he was just mad that he was awake and couldn't get up and play so he just sat in bed and yelled until he fell back to sleep. That left me laying in bed awake on and off trying to keep from laying on the "tapped" port and then having Jon roll into bed at about 5:30 or so. This working nights bologna is not the fun route to go.
Hydration again today at 10:30 coupled with a serious dose of Ativan (for nausea). The Merry Maids came by to do my bathrooms and kitchen, which has been a godsend. I get 2 certificates a month to use at participating providers for Hope Lives! a support group in Fort Collins and I use both of them for cleaning my house. I love it. It takes so much energy to do that kind of stuff and it's so nice to leave and come home to a clean house. I also started taking my pain meds for bone pain this afternoon. The pelvis pain is well underway. I was warned this would probably be the first to start to ache since it is such a large bone.
I have to say thanks to everyone that helped us out this week from dinners, to watching kids, doing laundry, wrapping my Christmas presents, running kids around, and calling to check in. You guys are awesome, and I wouldn't be able to do make it without and you!!
Monday, December 04, 2006
Mon Dec 5th
Also my bruising fingernails have now shown signs of falling off. Both my pointer fingers are working their way to about 1/2 way hanging on and the other ones aren't far behind that. Nice.... So I guess those dreams of keeping my fingernails are also going to be shattered. They don't really hurt, they are just tender. But they look awful. I am going to start wearing hats and gloves both. There isn't much that is fun about this unfortunately. I guess the whole idea of having a horrible week and then 2 good weeks is not realistic. For now I will have to say a horrible week and then 2 mediocre weeks.
I am already due to have my next FEC treatment this Wednesday so back to my nasty week without having very much normalcy since my previous treatment. DANG!! We put out all our Christmas decorations yesterday and put up our Christmas tree. I just love this time of year. I have been listening to Christmas songs every change I get and I love the smell of the tree in the house. I could do without the pine needles but I suppose that is just a part of it unless you want to break down and buy a fake tree. (which Jon refuses to do) Maybe I can get one on an after Christmas sale.
We also found out today that my sister-in-law Brandy that just had the baby still hasn't been released from the hospital due to her high blood pressure. She had the baby last Tuesday. Yesterday they decided to run some tests and have found that her kidney is 4 larger than normal. They will be doing some blood work and other tests to find out what exactly is going on later today. Let's hope that she is alright, adjusting to having a new baby is enough to deal with.
Thursday, November 30, 2006
Thur Nov 30th
My brother Ethan and his wife Brandy had their baby yesterday morning at 3am via C section. Isis Kason is his name and he was 5lbs 8oz. Tiny baby. I think we are going to try and make it over to visit him today at some point. Last I heard he was in the NICU getting some help breathing but he was 4 weeks early so I guess that is to be expected.
My kids loved the snow yesterday and they all got dressed up and played for a little bit. The twins only lasted about 10 min outside since it was so cold. I don't think it got above 20 here yesterday. BRRRR!! I will put some pictures on my link of them. I love the snow, I don't think it snows near enough.
Yesterday I went in to do my Herceptin in the blizzard yucky weather bright and early. I had a stuffy nose on Tuesday when I went to bed and has developed into a cold, but no sore throat or fever so that is good. When I walked into the office I dropped my new glasses and the lens fell out of them and then I remembered that I forgot to put my Emla cream on my port. DARN!!! I have never forgotten to do that and I knew it was going to hurt.....and it did, bad. I feel like such a baby but my port access point was still sore from being accessed 5 times last week so I think that made it even worse. I won't ever forget to do that again. My blood counts are also very low this week, both red and white which also explains why I have a bit of a cold and am exhausted. Everything else yesterday went by fine and no side effects with the Herceptin so I feel okay besides the cold and not having any energy. But at least I am not hanging over the toilet.
My mom finally got her juicer and I have been having carrot/apple juice a few times a day. It is supposed to be good for your blood, so hopefully that will help. Also still continuing with the essential oil massages. Hopefully between all that I will have better counts next week and keep avoiding taking the Neulasta shots.
Tuesday, November 28, 2006
Tues Nov 28th
Otherwise I am feeling pretty good. Actually a bit normal, which is nice. Jon and I had a great time this weekend celebrating our anniversary....I can't believe we have been married for 5 years. We went and did some Christmas shopping at Flatiron's and then went and saw A Christmas Carol at the Denver Center for Performing Arts. We have never done anything like that before so it was a lot of fun and a great play. Lots of singing, dancing, and it was funny at parts as well. We also stayed up in Denver overnight without the kids. It was great to be just the 2 of us. My parents and my sister Heater split up my kids and kept them for us. Did I mention it was GREAT!!
Tomorrow I will go in and do my Herceptin infusion and hopefully it will be straight forward and have no problems. My mom's birthday is tomorrow and she is going with me, fun birthday for her, but she insisted. Love you momma, Happy Birthday!!
Thursday, November 23, 2006
Thanksgiving
I went in on Tuesday for a doctors appointment and Herceptin infusion and saw the nurse practitioner. Mainly just a follow up to how chemo went the previous week. In my opinion to talk about all the ailments I have from chemo that they really can't do anything about and just say, "Yeah, that can happen. Sorry." and then do nothing about. I was feeling sick when I came in so I decided to stay for hydration after Herceptin. They offered to give me something for the nausea through the IV. They gave me Zofran and Decadron that was supposed to help. After that drip was almost done I got this headache behind my eyes and my vision went all fuzzy. The nurse described it as "swimey". Then said "Oh that can happen if they infuse this too fast." Okay so I come in to get help with feeling better and due to the medicine that is suppose to help me feel better and I feel worse?? It seems like any "side effect" that CAN happen WILL happen to me. So needless to say, had the headache and fuzzy vision feeling well into the evening and wouldn't you know it the medicine never did its intended purpose of easing the nausea.
Thanksgiving was quiet compared to a normal "Mondy" Thanksgiving. We went to my parents and were joined by my brother Ethan and his wife Brandy, Jon's parents, and then of course my parents and brother Mason. Mom made a wonderful meal and we were just bums for most of the day. Jon went down to visit our friend Tommy this afternoon that had back surgery yesterday in Denver. He is doing well and hopefully he will be home soon! Jon and I are going to go see A Christmas Carol at the Denver Center for the Performing Arts on Saturday for our activity for the Diana Price-Fish foundation and then stay overnight for our anniversary in Boulder. We are looking forward to the time alone since we haven't seen much of each other in the last few months. No 5am shopping going on in this house in the morning. Hope everyone doing some shopping tomorrow has fun and gets great deals!
Sunday, November 19, 2006
Sunday Nov 19th
I got to know another gal at chemo this week named Elisa. I had remembered her from being featured in the Poudre Valley Hospital newsletter back in August when I was first diagnosed. She was taking the same medicine I was prescribed to take (Herceptin) and her name is very similar to mine. I had seen her a few times in passing but never been able to visit with her before. She has a little boy named Will that is just over a year old. I am hoping to get to know her better through the next few weeks.
We left at about noon and I was doing fine except for the headache. I figured I better get in a good meal before the sick feeling set in. Oh course we headed to Lone Star and filled up. Mom got me home by about 1:30 or so and took Olivia for the afternoon. Jon's parents had the twins during the morning and I was able to rest some since they were sleeping when I got home. By about 4pm the nausea was in full effect. I felt like a pharmacy by the end of the afternoon. Tylonol for headaches, sudafed for the Cytoxin headache, Emmend for nausea that morning, compozine for nausea that afternoon, etc, etc. All that water too....I felt like I was going to float away. My mom had picked up the essential oils from the gal she met in Fort Collins and she offered to have us over Thursday to go through the Rain Drop massage and demonstrate so my mom could do it on me. I was feeling pretty rough about even getting in the car, but we made it over there and were able to go through the massage. It was pretty relaxing and I actually felt better afterwards. Mom said that she could see my back getting red from all the toxins that were being released. The lavender oil has seemed to do a pretty good job of keeping me relaxed at night to sleep. When I got home Jon could barley stand to stand by me though and I was ordered to immediately take a shower. Pretty potent smell.
Friday I woke up feeling terrible. I sat in bed for about an hour after I took my medicine. I got up and went in for my hydration appointment at 9:30. My friend Courtnee came over and watched the twins and did my laundry. I felt a little better after I did hydration, but still not great. Jon's aunt Clara and uncle Jon came up from Littleton and picked up Olivia for the weekend after she got out of preschool. They took her to do all sorts of fun things this weekend and she had a blast being spoiled and being the center of attention. She came home today with a bunch of chapsticks (her obsession), body lotion, Areil pajamas and an Ariel toy from the Disney store. All of which she wants to carry around with her and not put down. I just spent the rest of the day Friday laying around feeling yucky. Mom came over again on Friday to do another massage and then Jon rented some movies to watch on Friday night, but I only made it through about the first 10 min before falling asleep.
Saturday Jon was hard at work trying to get some more things done on the basement. Jon's parents were kind enough to take the twins for the day and I went to get my eyes checked and do hydration at the hospital. My oncology nurse told me not to get my eyes checked while doing chemo because the prescription would probably change, but with my eyes watering so much I can't stand to wear my contacts anymore with all the rubbing I am doing to my eyes. I haven't had new glasses for almost 4 years so I broke down and made an eye appointment on Saturday morning and got new glasses. My sister Heather came with me and then went to hydration with me at Poudre Valley Hospital since the oncology office isn't open on the weekend. It was fun to spend some time with her because we don't see each other that often. Again I felt some what better after hydration but nothing to write home about. When we got back to my parent's house my Dad decided that he was going to shave his head. He told me he would shave it when I started my FEC treatment becasue it is supposed to all fall out and stay out until I am done with this treatment. I will be a cue-ball in a week or so, so I am told. Heather buzzed dad's head and mustache and then Dad buzzed my hair again. I will put the pictures on my snapfish album. I spent the rest of the afternoon hanging out at my parent's house watching Mom and Heather make her famous chocolates. Yummy. Not too much help this year though. Jon and his buddy Vernon have been able to get about 3/4 of the basement framed. It is exciting to see it all coming together. Lazy Sunday night as well. Our friends Desi and Aislinn came over to hang out for awhile and we went to bed early in the middle of watching a movie.
This morning I felt a little better than yesterday but still not great. Mostly bummed around all morning waiting for yet another hydration appointment at the hospital. Dad took me this morning. I didn't really feel any better or worse after doing it today though so next time I will probably only go in for 2 hydration days. I haven't really felt like I am on the verge of being sick since Friday, I just feel overall yucky and have an upset tummy. I did the ginger oil this evening on my feet and it did seem to help a little. I am off to take a shower and go to bed. Nothing else to exciting to report....
Tuesday, November 14, 2006
Weds Nov 15th
I also had another EKG yesterday to make sure that the herceptin isn't doing any damage to my cardiac muscle. It looks like everything is going fine in that department. I have been using the lavender oil to try and help me relax at night and sleep instead of my ambien. It seems to work fairly well unless I really can't turn my mind off. Well, off to drink some more water!
Friday, November 10, 2006
Friday Nov 10th
Jon and I also had to take the twins in to get their second booster for the flu shot today. Jon also had to get his flu shot. Olivia had hers yesterday and I told her she didn't have to get shots again until kindergarten and she has been reminding me all day that she doesn't want to go to kindergarten.
Thursday, November 09, 2006
Thurs Nov 9th
Well good new today finally. I saw Dr. Medgyesy today before chemo. She is still not able to see feel the tumor during an exam. She said that given the light of the situation with the chemo doing what it was meant to do, shrink the tumor, and that currently is doing more harm then help, I am officially done doing the Taxotere. Last week was my last Taxotere treatment. Today I only had to do Herceptin. This is the drug that I will have to continue to have infused once a week for a year. But good news with this one is that there are no side effects, so today I had the best Thursday I have had in months. Dr. Medgyesy said that with the combination of my fingernails still being so sore I can barely use my hands without being in pain, the rash still peeling away the skin on my hands, and the horrible taste I continually have in my mouth that it isn't any benefit to keep forging ahead. She said that if for some reason the tumor hadn't responded as well as it did they might consider continuing but since it had done its job, we are good to go. Or not go I guess :-)
At this point we are moving our plan ahead by 3 weeks. I am scheduled to go in and have an ultrasound and Mammogram tomorrow morning, Chemo education on Tuesday morning, an Echocardiogram Tuesday afternoon, and start my FEC treatment on Thursday. The ultrasound and mammogram will check our progress, and echocardiogram will make sure that the taxotere hasn't had any bad effects on my heart. Chemo education is to go over all the "new" set of problems this new treatment will bring about.
The FEC treatment is a combination of the drugs 5FU, Epirubicin, and Cytoxin. I will have to continue the herceptin on a weekly basis but the FEC treatment will on be given every 3 weeks for 3 months. So far I have heard that it makes you very nauseaus so they pre medicate you with those anti nausea drugs. Also on this treatment I have to go in for "hydration" days the day after infusion and then also the 3rd day. This is to run hydration through my system and also to keep on eye on my CBC (complete blood count). If my counts go too low then I might have to do shots of neulasta, which we are hoping not to do. I have heard from many people that they cause SEVERE bone pain. The purpose of the shot is to produce more white blood cells. So that means on the 3rd week I go in for 3 days in a row. Since I don't really want to go to the hospital on the "hydration" days I decided to move my chemo day to Wednesday so I can go to my regular doc's office to do all my treatments. So far the only other thing about this new treatment that I have heard is to expect to be sick for about a week and feel fine for 2 weeks. No other word on surgery at this point.
My mom has also been doing so research about using essential oils to treat some symptoms like nausea, fatigue, etc. She has connected with a lady in Fort Collins that had a son with leukemia and tried the oils for various things. We are willing to try anything that might make the journey easier.
Monday, November 06, 2006
Monday Nov 6th
My friend Sheri came over today to help me out with the kids today and mom was over for the evening. It looks like some ladies from church are going to come help me out during the next 2 mornings with Jon's parents any my mom helping me in the evening and afternoon. Thanks for the help everyone. Hopefully by tomorrow evening it will let up some.
I just discovered this new song on the blog by KT Tunstall, suddenly I see. Isn't it a feel good song? I think so...That's why I chose it at least. Just wanted to give everyone an update on stuff from my horrible day yesterday. Love you all!!
Sunday, November 05, 2006
Sun Nov 5th
I made it through about 45 min of church (crying most of the time) before going home with mom. Olivia was sitting with her friend Isabella on the floor on our row at church trying to explain why her mom was crying. "She is just sad because her hair keeps falling out and now her hands really hurt, but we can keep coloring together." AHH!! So matter of fact, that one.
Pretty much the rest of the day I proved to be pretty worthless. Jon left for Laramie this evening so we went over to my mom's for dinner and to hang out. My brother Ethan and his wife Brandy were over for dinner and helped get the kids bathed and ready for bed and my other brother Mason kept them entertained. I only had to manage getting them back out of the car at home and getting them into bed. Thank goodness. I am also off to take my Ambien and try and sleep off all my frustrations of today. Hopefully doctor Medgyesy will have some sort of a fix for me in the morning.
Saturday, November 04, 2006
Sat Nov 4th
A few weeks ago my work had put together a fundraiser for me during the last weeks of breast cancer awareness month. It will be nice to have that money to put away towards all my medical expenses for the next year or so. Thank you to everyone that contributed to that and I hope that you know how much I love and miss everyone at the US Reports family!! You guys are the best.
This week my friend Shari came over to hang out on Monday and help out with the kids and house. Jon was home for a bit in the afternoon to do a "parts run" from Laramie, so we went out to get a pedicure in the afternoon. My friend Sarah had gotten me a gift certificate awhile back to go get one at a new place in Loveland. It was awesome. Olivia got to dress up for Halloween on Monday at preschool and was excited to go and visit the "grandmas and grandpas" at Sierra Vista nursing home. For Halloween I took the kids to my friend Jenn's work at Skyline medical complex in Loveland and they got to trick or treat to the medical offices there. It was really nice because it was inside and we were able to stay warm. Then Jenn and I took the kids to McDonald's for dinner and to play. I was so tired from all that walking around it was nice to get home and not have to worry about making and picking up dinner. My friend Alyssa's husband Heath came over and took Olivia trick or treating with their girls Darrian and Braxton so I didn't have to take the twins out. On Wednesday while Olivia was at preschool my friend Aislynn and I went out to do some shopping at Old Navy. Somebody had anonymously sent me a gift card to do some "self indulgence" (thanks!!) I got a few warm pretty sweaters for the winter. I also picked up my wig on Wednesday afternoon. It is a medium brown color and to my shoulders. I will take some pictures of it this week sometime and post them, I haven't gotten to it yet. It is funny to feel long hair on my head again, but it will be nice to wear to feel "normal" again every once in awhile. Thursday was treatment day and nothing to out of the ordinary. One poke, Judy is back in the saddle :-) , and everything by the book. In and out of there and then mom and I went to lunch at Red Robin. Yum, gotta love Red Robin. I guess anytime I am not having to do the preparation and clean up that is a good thing. :-) My wonderful In-laws stayed with me for the afternoon to tend the twins while I laid in bed totally worthless for pretty much the rest of the day. My parents came over to do dinner and the kids that evening. What would I do without everyone's help?? Thank goodness they are all so close and able to help me out with the kids, and me too! Jon and I were able to go out to eat at the Egg and I with the twins the other day. We went to go pay our bill and someone at the restaurant paid our bill and gave the waitress a note to give to me that said "A good deed had been done today in loving memory of my mother. Good luck to you ~ a friend" Of course I was in tears the rest of the time there and the whole way home. It is unreal to think about all the many women that this disease has impacted. I am so thankful that we live in an age where it isn't something that has to be hidden and ashamed of and that I am able to draw off family, friends, Heavenly Father and support groups for all I need.
Sunday, October 29, 2006
Sunday Oct 29th
I had some people over to help me out last week with kids and the house since Jon has been out of town. It was so nice of people to come help me cook, clean and look after my little munchkins. I just told Jon today that one full day of being at home isn't enough. He has been getting home on Friday afternoon and leaving again for work late Sunday afternoon. At least he has a pretty good job and we have those awesome medical benefits.
Thursday chemo went pretty standard. I had a late appointment so my mom and I were able to go see my girlfriend Abbey's baby up at Poudre Valley Hospital since the cancer center is right across the street. I hadn't been able to get down to see him with not having Jon around this last week. He is doing pretty well and is expected to come home tomorrow. Good news for mom and baby! It is amazing how you forget how tiny those babies are. Oh Thursday was the day it snowed in the morning too! I love the snow so that was a nice addition to the week. Boy it came and went fast though. I was able to see both Lanie and Karen at chemo this week so that was fun. I think they both do their treatments only every other week so I don't always see them. I also saw another gal there that I haven't gotten to know over the past 2 months named Claude. She is French and is so sweet. She also had breast cancer and is doing some kind of clinical trial so is still at the doctors office on a regular basis. She had brought me all sorts of scarves and hats. I wore one this weekend that she gave me that is really pretty and have a picture of it on my pictures link. Still the same story with the remainder of the day on Thursday. Really tired and not a lot of energy. Jon's parents were able to stay with me and kids until dinner and then my mom came over to babysit :-) from dinner until bedtime.
Friday my friend Courtnee came over to help out with things around the house and also another girlfriend Heather from high school came over with her daughter Jaycee to visit for a bit in the morning. That was fun because I haven't seen Heather in such a long time. Jon was home on Friday afternoon and we all went to a "trunk-or-treat" at my church. The kids all dressed up in their Halloween costumes and then they go trick or treating in the parking lot of the church to everyone's cars. It was pretty fun. The twins were tinkerbell and peter pan and Olivia was a fairy with wings and a wand (that was the important part she kept reminding me that she wanted wings and a wand).
I had signed up to be a part of a foundation in Denver for cancer patients called Diana Price-Fish. They help cancer patients "enjoy life" by funding them to do one fun activity a month of their choice. I just got off the waiting list this month so was able to take advantage of that this weekend. They paid for Jon and I to go out to eat at the Melting Pot in Fort Collins. Jon and I had gone to the one in Louisville for his birthday a few years ago and really enjoyed it so I thought that would be fun. We went with some of our good friends Tommy and Sherri Chapman and had such a good time just relaxing and enjoying each other's company. It is such a laid back dinner and took us about 3 hours so you are not at all rushed. It was fun.
Today hasn't been too bad. I felt well enough to go to a little bit of church this morning so that was nice and have just been relaxing this afternoon. My mom is making us dinner tonight so I don't have to worry about that since Jon is on his way out the door again this afternoon. I will post our Halloween pictures of the kids on the link as well.
Sunday, October 22, 2006
Sunday Oct 22nd
My neighbor Cindy also brought be some pretty ribbon to hang up all the hand stamped cards I have been getting, but by the time I hung up over 30 cards you could barely see the ribbon. They are hung over my bathroom mirror.
I know they will always brighten my day when I get up and look at the sea of pink well wishes above my mirror every morning!
Friday, October 20, 2006
Friday Oct 20
I also received my DNA test results already yesterday. I have tested negative for both the BRCA1 and BRCA2 gene. This is good news, but leaves me wondering what is the cause for the cancer. Why did I develop this if I don't have the gene? The answer? Nobody knows....Man that is so frustrating! Where I had a plan of action if I tested positive for the gene, the plan is now unclear as far as what surgery I will end up having. My oncologist and surgeon probably won't make those recommendations until I am completely finished with chemotherapy. Even if they say I only need to have a lumpectomy, do I have a mastectomy in hopes of not getting again anyway? They say that I fall back into the general population as far as chances of getting it again 6 to 11%, but hey if I had it once and had bad luck....... I guess it is just hard because the answers aren't black and white. But, nonetheless this is good news for me, my sisters, my mother, and my daughters.
Moving right along...Chemo went well on Thursday. One poke and my port was accessed on the first time. Judy has her touch back! Did I mention I love my oncology nurse. She is so sweet. I can say that my chemo days are getting harder and harder on this new taxotere. I wasn't so much tired where I had to take a nap I just had no energy to do anything. I sat on the couch the whole afternoon and my wonderful neighbor Ann offered to come down and play with the kids. I couldn't even lift my arm up without thinking, Man this stupid arm weighs a ton. I was completely worthless. It feels so bizarre to not have any energy to do anything. I will just know that I always need a babysitter all day on Thursday for me and the kids.
Jon is back for the weekend from Laramie. Yeah! My hero! I don't know how single moms do it! The week has gone by pretty quickly. I ordered a wig awhile ago that came in on Monday but the color was more gray than blonde so we are sending it back. My neighbor Cindy belongs to an online stamping group called spilt coast stampers. She had posted something about me on her site and I have received all sorts of cute hand stamped cards in the mail. They are so pretty. It has been nice to have my mailbox filled with pink cards and well wishes. Cindy is going to make me some garland or something to hang on my wall to display them. Thanks to all those ladies that sent me a card. I love them.
Monday, October 16, 2006
Mon Oct 16th
Jon shaved his head on Friday and my girlfriend Alyssa's husband Heath shaved his head on Saturday afternoon. We should start a skin-head gang.
As pattern would have it I felt yucky again yesterday. I have had a headache for the last 2 days and was sick to my stomach for most the day yesterday. I just feel low on energy all the time. I try to still get out and do stuff to feel normal, even though I don't feel good. It helps to keep busy with other things to take my mind off not feeling well. I almost feel pregnant again. I have to eat something every few hours and you just never know how you are going to be feeling from one min to the next.
Jon is working nights again this week up in Laramie and I think he will plan on staying up there for most of the week. My twins club meeting is tonight with a speaker from the Susan G. Kolman foundation. Like I said before if anyone is interested in coming it is open to everyone. Just give me a call or email me and I can give you more information if you are interested.
Thursday, October 12, 2006
Thurs Oct 12
I went to chemo today at 8:30am this morning and it started out a little rough. I put Lidacain cream over my port before every treatment so I don't feel the poke of the needle when the access my port. My nurse Judy, who I love, had trouble this morning accessing it. She has always accessed it on the first try at all my other chemo sessions. It was moving around or something but being difficult. Mind you I couldn't feel most of it but she stuck me about 6 times before she decided to have someone else try it. One of the other nurses Ann come over and had me sit a different way and got it on the first time. When I looked down my skin over my port looked like a pin cushion, literally. I think Judy felt worse about it then me, poor girl. I suppose everyone is entitled to a bad day everyone once in awhile. (As long as your patient is numb, that is) Everything else seemed to go by the book, which is fine with me. We were actually home before 1, which was a nice change. Thursdays I suppose are going to turn out to be hard days as well. This one was much like last week. I got home and was just so tired I could barely put one leg in front of the other. When I laid down I was asleep as soon as my head hit the pillow, which is just not me. I always sit in bed for at least 30 min before I can fall asleep. When I left chemo my port was hurting and has been really hurting for the rest of the day. I took a long nap this afternoon and still woke up with zero energy and the regular heartburn. I have been pretty worthless for the whole day. Luckily Jon's parents took Olivia on a trip to the mall while I slept it off with the twins and then my mom came back to make dinner and help with the kids this evening. My head is still VERY itchy and is always red from scratching it all the time. I think I am going to take a bic to it this weekend since it is still falling out anyway. Well off to bed!
Monday, October 09, 2006
Mon Oct 9th
My twins club this month is having a speaker come from Susan G. Kolman for our general meeting. It will be held on Monday October 16th at 7pm at Mountain Veiw Presbyterian Church. The church is about 2 blocks south of 29th street on Garfield in Loveland. If anyone is interested in coming they are opening the meeting up to the community and feel free to contact me.
It's funny how many people stop and stare and point at you when your bald. I am starting to get used to it and point back or wave. My usual smarty pants attitude I suppose. I have mostly just been out without hats or scarves on because my head is still really itchy and it is just uncomfortable to have something else on it. I guess it just is what it is. I think it is just hard because it is the realization that I am sick, that there is something wrong with me, and that I still have a long road ahead of me. And I think it is the same for my friends and family too, that see me like this. No matter how good of an attitude I have it is still there and it is a crappy reminder every day.
Sunday was still my hard day again. The nausea wasn't too bad yesterday but I had really bad heartburn which isn't any better. Just a sharp pain in my chest all afternoon. Otherwise just still pretty low on energy. The oncologist recommended all of us getting the flu shots done so I will be trying to take me and kids in to get those this week sometime. Jon is back to working nights and is working in Laramie to boot so the company got him a hotel room up there for the week. With the weather and all I feel much better about him staying up there and not driving 287 in the wee hours of the morning. Hopefully my kids will be on their best behavior for me for the week, otherwise we are in for a long week.
Don't forget that it is buddy check 9 day!!
Thursday, October 05, 2006
Thurs Oct 5th
The one bad thing about the rest of the day is that I have just felt so worn out. I got home and napped for a few hours and the whole rest of the night I haven't even had the energy to do anything. I feel like a zombie. We had our home teachers over this evening also. It was nice to be able to hear a spiritual message since I haven't been able to go to church for about a month. Our home teachers are Steve West and Karl Olander. For those of you who don't know Karl, he is deaf. Olivia just loves him. She knows how to sign his name and has been pretending to sign with Steve when they were here tonight. She always likes to find him at church and say hi to him. Karl gave me this quote that he found today that I thought was neat and I would share:
Good Morning, this is heavenly father. I will be handling all your problems today, so have a good day.
And you guys all do the same!!