Okay, I'm just going to have to say this has been the worst 24 hours since I shaved my head. I think I have cried about a thousand times today. Ever since posting yesterday my hands have gotten a million times worse. I look like I have a flesh eating virus all over my poor hands. The dark red rash is now between all my fingers and has spread down onto my wrist and on the sides of my palms. Every time I move my fingers and hands I am in agony. I feel like my skin is too small for my hands and that every time I move my hands it is just pulling the skin tighter and tighter. I can't touch anything, put my hands under water, pick up my kids, rub my hands against anything........I tried to sleep last night with my hands out of the covers so they didn't rub on the sheets but then froze my arms off. I can't win. And the darn thing itches to boot. As if I haven't had enough itching during my pregnancies to last a life time and then some. (for those of you who didn't know I had some unheard of liver condition with my pregnancies call Cholestasis of pregnancy that made me unbelievably itchy. I think it is a horrible way of torture!!) I will definitely be on the phone with the doc in the morning to see if this can at all be settled down. I can't even describe how frustrated I am. I can't do ANYTHING with my hands. I guess I might need to learn how to do things with my toes??
I made it through about 45 min of church (crying most of the time) before going home with mom. Olivia was sitting with her friend Isabella on the floor on our row at church trying to explain why her mom was crying. "She is just sad because her hair keeps falling out and now her hands really hurt, but we can keep coloring together." AHH!! So matter of fact, that one.
Pretty much the rest of the day I proved to be pretty worthless. Jon left for Laramie this evening so we went over to my mom's for dinner and to hang out. My brother Ethan and his wife Brandy were over for dinner and helped get the kids bathed and ready for bed and my other brother Mason kept them entertained. I only had to manage getting them back out of the car at home and getting them into bed. Thank goodness. I am also off to take my Ambien and try and sleep off all my frustrations of today. Hopefully doctor Medgyesy will have some sort of a fix for me in the morning.
5 years ago
1 comment:
Long time reader, first time caller...I mean commenter. I read your blog everyday, and I'm always telling my husband what is going on with you, it may sound strange because I don't know you (I was roommates with Toni), but I thought that was such a neat story about the woman who paid for your dinner. You remind me a lot of my sister-in-law who had cancer, and lost a 4 month old child all in the same year. She showed her family and friends such courage and faith that it sets an example for everyone; we know how we should handle tragic experiences if they ever come up. And you are an example to many more people too.
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