Another treatment down, 3 more to go on Taxotere and then I will start my new medications. I am still having the same side effects as last week, only worse. The rash has spread to more of my hands and is now starting to blister in the really red spots. It both itches and hurts and there isn't anything that I can topically put on it to make it go away. They just say whatever helps relieve the itching/hurting like hydrocortisone or lotion I could try. Since it is systemic there isn't anything that will help a whole lot. The doctor did give me a steroid to try and take both the day before and after treatment to see if that would help with the pain in my fingernails. They are also starting to get the dark lines in some of them. Luckily they aren't black yet, only light purple I would say. I guess that is a little better today but not much. It still hurts to grab things, rub things, etc. I try to keep the kids in clothes that don't have buttons and complicated things like that. I guess it is a good thing that these things didn't start happening until the last few weeks and hasn't been going on all along. My hair has been steadily growing but it really sparse in the front and thin. They expect that it will fall out again with my new treatments after Thanksgiving. The nurse said that if I try and keep it buzzed a little bit longer it shouldn't be as itchy. The itching head has let up some, it really doesn't bother me to much unless I have a hat or something on my head for a long period of time. Thursday after treatment we came home and mom made a really good steak and potato dinner (one of my favorites) and I was welcomed with yet another great side effect which I am going to call the "cardboard effect". I think your taste buds start to shut down or something because more and more everything starts to taste bland. I can't eat anything more spicy than medium salsa without my mouth being on fire either. What a bummer this is!! So my biggest complaint for the week would have to be my red and blistering rash....
A few weeks ago my work had put together a fundraiser for me during the last weeks of breast cancer awareness month. It will be nice to have that money to put away towards all my medical expenses for the next year or so. Thank you to everyone that contributed to that and I hope that you know how much I love and miss everyone at the US Reports family!! You guys are the best.
This week my friend Shari came over to hang out on Monday and help out with the kids and house. Jon was home for a bit in the afternoon to do a "parts run" from Laramie, so we went out to get a pedicure in the afternoon. My friend Sarah had gotten me a gift certificate awhile back to go get one at a new place in Loveland. It was awesome. Olivia got to dress up for Halloween on Monday at preschool and was excited to go and visit the "grandmas and grandpas" at Sierra Vista nursing home. For Halloween I took the kids to my friend Jenn's work at Skyline medical complex in Loveland and they got to trick or treat to the medical offices there. It was really nice because it was inside and we were able to stay warm. Then Jenn and I took the kids to McDonald's for dinner and to play. I was so tired from all that walking around it was nice to get home and not have to worry about making and picking up dinner. My friend Alyssa's husband Heath came over and took Olivia trick or treating with their girls Darrian and Braxton so I didn't have to take the twins out. On Wednesday while Olivia was at preschool my friend Aislynn and I went out to do some shopping at Old Navy. Somebody had anonymously sent me a gift card to do some "self indulgence" (thanks!!) I got a few warm pretty sweaters for the winter. I also picked up my wig on Wednesday afternoon. It is a medium brown color and to my shoulders. I will take some pictures of it this week sometime and post them, I haven't gotten to it yet. It is funny to feel long hair on my head again, but it will be nice to wear to feel "normal" again every once in awhile. Thursday was treatment day and nothing to out of the ordinary. One poke, Judy is back in the saddle :-) , and everything by the book. In and out of there and then mom and I went to lunch at Red Robin. Yum, gotta love Red Robin. I guess anytime I am not having to do the preparation and clean up that is a good thing. :-) My wonderful In-laws stayed with me for the afternoon to tend the twins while I laid in bed totally worthless for pretty much the rest of the day. My parents came over to do dinner and the kids that evening. What would I do without everyone's help?? Thank goodness they are all so close and able to help me out with the kids, and me too! Jon and I were able to go out to eat at the Egg and I with the twins the other day. We went to go pay our bill and someone at the restaurant paid our bill and gave the waitress a note to give to me that said "A good deed had been done today in loving memory of my mother. Good luck to you ~ a friend" Of course I was in tears the rest of the time there and the whole way home. It is unreal to think about all the many women that this disease has impacted. I am so thankful that we live in an age where it isn't something that has to be hidden and ashamed of and that I am able to draw off family, friends, Heavenly Father and support groups for all I need.
5 years ago
No comments:
Post a Comment