Monday, February 26, 2007
Mon Feb 26th
Hey everyone, first of all let me say thanks to everyone for all their encouraging words over the weekend. I feel much more at ease about going "under the knife". I had a busy weekend which was nice way to get my mind off of things. Jon got home late Friday night so me and the kids went and had pizza with my girlfriend Abbey and her kids. Saturday Jon was busy working on the electrical in our basement with his buddy Seth and I went shopping with my mom in the morning and took Olivia swimming with my friend Courtnee and her boys in the afternoon. Courtnee and Seth's family stayed for dinner and my friend Lanie also stopped by to help set my mind at ease about surgery, something she is all to familiar with. Sunday we went to church and spent time with my parents. Jon and my dad were able to give me a blessing last night and I feel much better today and was able to sleep better last night. All and all very busy and very fun.
Today I was thinking more about going into surgery and having all that time sitting in the hospital and thought of a way I think everyone could help me. I was going to put a little book together with inspirational thoughts. I thought if everyone could think of their favorite inspirational quote, saying, song lyrics, scripture, pretty much anything that inspires you or helps you get through hard times and email it to me at elizajonbrock@msn.com I could print off the emails and have them to look through. Nothing super long so I will have time to get them all together. Sort of a way for all my friends, family, friends of friends, anyone who has followed my blog to be there for me during the not so fun time. If everyone could find a minute to email me that by tomorrow night that would be a tremendous help for me. I love you all very much and don't know what I would do without you. Thank you for everything and be back soon!!
Friday, February 23, 2007
Friday Feb 23rd
This is out of a book I started to read a few days ago called The Victoria Secret Catalog never stops coming. Embarking on my mastectomy surgery I thought this might be an amusing read over the next few days. (Thanks Jennifer!) I read this last night and it helped me to relax my mind a bit.
It has been a pretty long week. Jon has been working out of town again and the kids have been pretty well behaved but I am a nervous wreak. I am getting ready for my surgery next Wednesday. I went to Herceptin on Wednesday afternoon and then went and registered Olivia for Kindergarten. I can't believe that she is already old enough to be going to Kindergarten. Yesterday I had my friend Shari offer to come over and help me out with the kids while I ran some errands and went to a doctor's appointment in the afternoon. It is so much easier to do errands without dragging 3 kids in and out of every place that should be a quick stop. I went to see Dr. Tsoi (pronounced Choy) yesterday afternoon. He is a plastic surgeon. I wanted to have a realistic idea of the outcome of my body after all this cancer business. He told me that because I was going to do radiation that the route of reconstruction relying on tissue expander's and an implant probably wasn't going to work for me. Radiation leaves the skin very UN-flexible and hard to work with. He explained that it fries all the blood vessels in the skin. He said that a better route for me to go was to do a TRAM surgery which would transplant tissue from my tummy or my back into my breast area to get the blood circulation back in that area and provide better insulation for an implant. Being that I have about zero extra skin or fat on my tummy he suggested that taking it from my back was a better plan. I was pretty depressed to hear this news. Not only would I have to deal with healing around my breast but also in the area where the tissue is transplanted. Not to mention the giant scars it would leave in both places. Also the fact that the skin is a different color in those areas than it is in your breast. He also used the analogy that reconstruction surgery using transplanted tissue is like robbing Peter to pay Paul. Meaning I could have other complications in the area that tissue is taken from while trying to use those muscles that are no longer there. We watched a short video about reconstruction. (I love that all the women in these brochures and videos are at least 50) We also got to see pictures of other patients that have gone through the procedures. That was a treat. They are reconstructed so they look normal with clothes on, without is a different story. They look almost Frankenstein-ish. 2 different skin tones, scars everywhere. Women who were able to go the expander and implant route looked a million times better in my opinion. The goal is to appear normal over clothes but I just hadn't prepared myself enough I guess to look so different. I was so angry and depressed after leaving his office. I hate what cancer has done to me and what it is still going to be taking away from me! I guess you can't always have good days. I am still not having 2nd thoughts on doing the mastectomy, I just wish that I could face this part of my treatment thinking that I would still look OK in the end, maybe not great but not like Frankenstein. I am going to go and get a 2nd opinion after I start my radiation and they can see a little better what to expect with the skin damage from radiation. The one good news that I received was that I would only have to wait 6 months to start reconstruction (after radiation) and not a full year. Needless to say I am still feeling rather bummed and depressed today and now that much more nervous about my surgery that is only 5 days away. Leave me a comment and cheer me up!!
Sunday, February 18, 2007
Sun Feb 18th
After dinner we went to a dueling piano bar called sing sing. The piano players there are amazing and they can play pretty much anything you request. Aislinn and Kira put in a request to try and get me up on stage and have them play "I'm to Sexy" but instead the piano players asked me to come up there with a bunch of other people that had birthdays or anniversaries and do the Hokey Pokey in front of everyone. It was embarrassing but pretty funny.
Aislinn, Desi, Jon, and I also went dancing at Polly Esther's afterwards. They played 80's music and it was pretty funny to just hang out and be silly grooving to the 80's. The 4 of us stayed down in Denver overnight. It was a good way to take my mind off all the thoughts and stress of the week. We took some other pictures and I have some new pictures of the kids on my snapfish link.
I am pretty nervous about my surgery. I have been taking Ambien at night to try and sleep and not lay awake thinking about it. I still feel that having the mastectomy is the right choice for me and have felt that personal revelation from Heavenly Father. I feel at peace with this when I pray about it. I know the lord is watching over me and I have faith that I am doing the right thing, but I am still scared to live the reality of going through with it. I am scared to look different, to deal with the pain, to deal with multiple reconstructive surgeries, pretty much scared of ever aspect of it. My husband used a good analogy earlier when we had our home teachers over and were discussing it. He said that faith is like walking into a dark cave and having a candle in your hand and only being able to see the small part of the cave directly in front of you. I have to take my faith (my candle) and put my trust in that and know that while I only see the light directly in front of me, the lord is able to see everything. Even though I am scared to go through with it I have to put my trust in the lord and know that he will be there every step of the way.
Sunday, February 11, 2007
Sunday Feb 11th
I went in to see my oncologist on Friday. I am so confused right now. She asked if my surgeon was surprised at my MRI results seeing as how they cannot detect anything signs of cancer any longer. I told her that yes he was but that I had still decided to go ahead with the mastectomy. She was very surprised and just said, "You are, but why??" When I explained my worries about getting breast cancer again later she said that if I was going to have one based on that theory that I should go ahead and do a double mastectomy because I had just as much of a risk of getting it on the left side as the right. I hadn't really thought about it that way, but it makes perfect sense. She said that I could always do the lumpectomy now and then have a mastectomy surgery after 5 years. In her way of thinking, over the next 5 years I have a much greater risk of the cancer that I already have coming back in a far away place in my body, most likely my lungs or liver, and not my breast. Not having a 2nd breast cancer develop. In my mind I am thinking that since it is not able to be found currently in my breast and it is gone, why would it come back somewhere else? And even after the next 5 years, I am in a higher risk group of getting a 2nd breast cancer. Since I am hoping to live longer than 5 years I would rather just have the mastectomy now and not be thinking about having it in 5 years when I am healthy. Just get it over with now. She also said that since I would have to wait to do reconstruction for 1 year that I could always have the left mastectomy done when I go in for reconstruction so they could just place the tissue expanders in at the same time of surgery on that side. I am still thinking about doing that. I am just confused because the surgeon and the oncologist both said either choice was okay and then it seemed she was disappointed that I chose the mastectomy. She just said, I don't think you realize what your getting yourself into with reconstruction after radiation. It is a long, hard, and painful road to do reconstruction and you are never going to look the same again. She did leave saying that again, I needed to choose the right thing for me and what she may choose for her might be different then what I would choose for me in the same circumstances. I liked it better when they just said, this is what you have to do. I know it is going to be a long road still after surgery but I would rather just do it now and get it over with then wait 10 or how ever many years down the road and get breast cancer again. It isn't like they know what caused all this in the first place so I can't really avoid whatever it is that caused it all. If I have already had it once, who's to say I won't get it again. No thanks! I will take my chances of not having "nice breasts" then not being around for my kids or even grandkids. So I have still made up my mind to go ahead with the mastectomy despite all the ups and downs of the week. Now I just have to wait the 2 and a 1/2 weeks for the big day. How exactly do you carry on without being totally nervous and stressed about that?? I guess a lot of Ambien, huh? Jon will be working out of town in Salida again this coming week and then somewhere in New Mexico the following week so he will be here the week I have surgery. Hopefully my kids will be on their best behavior for me for the next little bit. I can hope at least :-)
Thursday, February 08, 2007
Thurs Feb 8th
I talked to the surgeon Dr. Chiavetta today. He also told me that I could do either surgery and that since my case was very unique that he would feel comfortable with either treatment for me. Since I am so young and my tumor was so large to start out with, he said they don't have a lot of scientific evidence that one option is any better than the other. In my way of thinking I am still going with the aggressive treatment so I can look back and have no regrets if I do have breast cancer again later in life. I am going to have a simple mastectomy done on the right side. I will have surgery on the 28th of February have have to stay overnight at Poudre Valley Hospital. I will go in to radiology that morning and they will inject a radioactive substance into the previous tumor site that will help them identify the sentinel lymph node. Then at noon I will go ahead with the surgery. The surgeon said that I will have a drain in the surgical site for about 2 weeks to drain off fluid that collects in that area. I don't have any set limitations, he said that I was allowed to do anything that felt comfortable and not to really expect to be lifting for about a week. I will have a small incision under my arm where the lymph nodes will be removed and then a horizontal incision across my breast. I have fasted and prayed about this decision and feel like it is the right one for me, but at the same point it hasn't made it any easier to accept. The thought of it all is much easier that the reality of having the discussion with the surgeon and setting a date.
Tuesday, February 06, 2007
Tues Feb 6th
60 above zero: Floridians turn on the heat. People in Colorado plant gardens.
50 above zero: Californians shiver uncontrollably. People in Denver sunbathe.
40 above zero: Italian & English cars won't start. People in Colorado drive with the windows down.
32 above zero: Distilled water freezes. The water in Golden gets thicker.
20 above zero: Floridians don coats, thermal underwear, gloves, wool hats. People in Colorado throw on a flannel shirt.
15 above zero: New York landlords finally turn up the heat. People in Colorado have the last cookout before it gets cold. Zero: People in Miami all die. Denverites close the windows.
10 below zero: Californians fly away to Mexico. People in Colorado get out their winter coats.
25 below zero: Hollywood disintegrates. The Girl Scouts in Colorado are selling cookies door to door.
40 below zero: Washington DC runs out of hot air. People in Colorado let the dogs sleep indoors. 100 below zero: Santa Claus abandons the North Pole. Denverites get upset because they can't start the Mini-Van.
460 below zero: ALL atomic motion s tops (absolute zero on the Kelvin scale.) People in Colorado start saying..."Cold 'nuff fer ya?"
500 below zero: Hell freezes over. Denver public schools will open 2 hours late.
I also wanted to pass on an email I received about the new breast cancer stamp:
THE STAMP Please read the following story and follow the instructions at the end! Thank You . Like most elementary schools, it was typical to have a parade of students in and out of the health clinic throughout the day. We dispensed ice for bumps and bruises, Band-Aids for cuts, and liberal doses of sympathy and hugs. As principal, my office was right next door to the clinic, so I often dropped in to lend a hand and help out with the hugs. I knew that for some kids, mine might be the only one they got all day.One morning I was putting a Band-Aid on a little girl's scraped knee. Her blond hair was matted, and I noticed that she was shivering in her thin little sleeveless blouse. I found her a warm sweatshirt and helped her pull it on. "Thanks for taking care of me," she whispered as she climbed into my lap and snuggled up against me. It wasn't long after that when I ran across an unfamiliar lump under my arm. Cancer, an aggressively spreading kind, had already invaded thirteen of my lymph nodes. I pondered whether or not to tell the students about my diagnosis. The word breast seemed so hard to say out loud to them, and the word cancer seemed so frightening.When it became evident that the children were going to find out one way or another, either the straight scoop from me or possibly a garbled version from someone else, I decided to tell them myself. It wasn't easy to get the words out, but the empathy and concern I saw in their faces as I explained it to them told me I had made the right decision. When I gave them a chance to ask questions, they mostly wanted to know how they could help. I told them that what I would like best would be their letters, pictures and prayers. I stood by the gym door as the children solemnly filed out. My little blond friend darted out of line and threw herself into my arms. Then she stepped back to look up into my face. "Don't be afraid, Dr. Perry," she said earnestly, "I know you'll be back because now it's our turn to take care of you." No one could have ever done a better job. The kids sent me off to my first chemotherapy session with a hilarious book of nausea remedies that they had written. A video of every class in the school singing get-well songs accompanied me to the next chemotherapy appointment. By the third visit, the nurses were waiting at the door to find out what I would bring next. It was a delicate music box that played "I Will Always Love You." Even when I went into isolation at the hospital for a bone marrow transplant, the letters and pictures kept coming until they covered every wall of my room. Then the kids traced their hands onto colored paper, cut them out and glued them together to make a freestanding rainbow of helping hands. "I feel like I've stepped into Disneyland every time I walk into this room," my doctor laughed. That was even before the six-foot apple blossom tree arrived adorned with messages written on paper apples from the students and teachers. What healing comfort I found in being surrounded by these tokens of their caring. At long last I was well enough to return to work. As I headed up the road to the school, I was suddenly overcome by doubts. What if the kids have forgotten all about me? I wondered, What if they don't want a skinny bald principal? What if. I caught sight of the school marquee as I rounded the bend. "Welcome Back, Dr. Perry," it read. As I drew closer, everywhere I looked were pink ribbons - ribbons in the windows, tied on the doorknobs, even up in the trees. The children and staff wore pink ribbons, too. My blond buddy was first in line to greet me. "You're back, Dr. Perry, you're back!" she called. "See, I told you we'd take care of you!" As I hugged her tight, in the back of my mind I faintly heard my music box playing . . . "I will always love you."
We need those of you who are great at forwarding on information with your e-mail network. Please read and pass this on. It would be wonderful if 2007 were the year a cure for breast cancer was found!!!! This is one email you should be glad to pass on. The notion that we could raise $35 million by buying a book of stamps is powerful! As you may be aware, the US Postal Service recently released its new "Fund the Cure" stamp to help fund breast cancer research. The stamp was designed by Ethel Kessler of Bethesda, Maryland. It is important that we take a stand against this disease that affects so many of our Mothers, Sisters and Friends. Instead of the normal 37 cents for a stamp, this one costs 40 cents The additional 3 cents will go to breast cancer research A "normal" book costs $7.40. This one is only $8.00. It takes a few minutes in line at the Post Office and means so much. If all stamps are sold, it will raise an additional $35,000,000 for this vital research. Just as important as the money is our support. What a statement it would make if the stamp outsold the lottery this week. What a statement it would make that we care. I urge you to do two things TODAY: 1. Go out and purchase some of these stamps. 2. E-mail your friends to do the same. Many of us know women and their families whose lives are turned upside-down by breast cancer. It takes so little to do so much in this drive. We can all afford the $0.60. Please help & pass it on.
Hope everyone is having a good day!
Friday, February 02, 2007
Friday Feb 2nd
I went to Herceptin on Wednesday which only takes about an hour so that is a nice switch. I also found out that the results from my MRI are great. They didn't even find any traces of anything on my right side. I will now be waiting to speak to my surgeon on the 8th about what kind of surgery I am going to have. I am still leaning towards doing a mastectomy on the right side just because I am young and would be so mad at myself if I did get it again and hadn't been aggressive in trying to get rid of it the first time around. I never want to have to go through this again, and I want to do everything in my power to make sure that I don't.
Jon is working on plumbing in the basement tonight and is going to try and get the framing all done this weekend. A little at a time I suppose. It will be nice when we have it finished and have the space for this kids to spread out. The twins room is a nightmare by the time the two cribs are stuffed in there, a dresser, and all their toys there is barley any room to walk around. We went to my nephew's first birthday party this evening. We had pizza for dinner and so far one of my nephews has gotten sick and Olivia has been sick twice since eating. That darn cheese pizza. The twins wouldn't even eat it. I was mad at the time but am now thanking my lucky stars that I don't have 3 kiddos throwing up. Nothing else too exciting to report.
Thursday, January 25, 2007
Thurs Jan 25th
I was able to get a surgery date scheduled for the 28th of February. I still don't know what surgery I will end up having but it is nice to have a date so that my other sister, Amy, could make travel plans to be here to help out. I also found out that I have to wait 6 weeks after surgery to start radiation. Then do 6 weeks of radiation. Nothing like dragging out the process. Jon and I were thinking about getting away for a few days in May, but I guess we will have to wait.
My eyelashes are all gone. Total bummer. I could deal with my eyebrows since they were practically non existent to begin with but my thick, long, big eyelashes are another story. I went with my sister to get some false ones yesterday that look pretty good but itch on my skin. It looks pretty funny not to have any hair, eyebrows, or lashes.
I got a gift subscription to netflix for Christmas from my work that has been awesome. It is so convenient to just be able to pick out movies online and have them come in the mail. They have been fun to watch while I am feeling down and out.
I went in for Herceptin yesterday. It is nice to go in and be done in about an hour. Much nicer than camping out there for 1/2 the day. My sister and I met my parents and brother Mason last night to go out to eat. Our friends Vernon and Kira watched my kids so we could have an adult night out. It was really nice. I have my breast MRI on Friday afternoon and then I don't meet with my surgeon until the 8th. I am taking Jon out on Saturday for his belated birthday celebration. We are going to see the Music Man at the Carousel Dinner Theatre in Fort Collins. Hopefully it is fun.
My friend Aislinn is hosting a Layers Clothing Open House Party for me next Thursday night from 6:30pm to 8:30pm. If anyone is interested in ordering something but won't be able to make it you can look at their website at www.layersclothing.com and let me know via email at elizajonbrock@msn.com or if you need directions to my house and are interested in coming you can also email me. I love their shirts and they are having a big sale right now so that is a bonus. All the proceeds will go towards my medical bills. Hope everyone has a good weekend!
Friday, January 19, 2007
Friday Jan 19th

Well the good news is I had my last FEC treatment on Wednesday, but the bad news is that it has been a horribly long week. Jon had to go out of town this week to work in Salida. He left really early Monday morning and just got home this afternoon. Olivia was really sick on Friday night with what we though was food poisoning. She threw up about 5 times during the night and then was fine by Saturday afternoon.
Monday I had my appointment with Dr. M to talk more about surgery options and the rest of my regiment. No matter what way we decide to go with surgery I have to have 6 weeks, yes, 6 weeks of radiation. Monday through Friday with the weekends off. That was a bit longer than I had anticipated. I had all sorts of questions for her about surgery. Since we had always planned on doing the mastectomy from the beginning that is what I have been preparing myself for and with this other option I am having my doubts. She has always said, "Eliza your young and we want to be really aggressive in trying to get rid of this." So that has also been my mind set. I would just hate to do something less than aggressive the first time and then have it come back and say man if I just would have gotten rid of this thing in the first place....yada yada. She did say that it was still my choice to do whatever surgery that I would feel the most comfortable with and that it would probably be best to make a final determination after I did my final breast MRI next week and then meet with my surgeon Dr. Chiavetta. I left feeling kinda defeated thinking that I would be leaving this appointment with a definite answer on "the next step". All in good time I suppose. Also I found out at my appointment that I would have to start taking a prescription for progesterone since I can't seem to stop my period. (lovely)
Needless to say Olivia must have gotten a bug because by Monday night I was sicker than a dog also. After going through chemo for 6 months and not throwing up I defiantly got my fill in on Monday night. If I wasn't on the toilet every hour I was hanging over it. YUCK! Good thing my mom loves me and lives close by. She came to my rescue on Tuesday morning and stayed with me and the kids until my sister Toni got back into town on Tuesday afternoon. When I called the doctor to ask if I still had to do chemo the next day they unfortunately said yes, unless I was still throwing up. (I should have made myself throw up again that afternoon) Who knew that my last chemo would be my very hardest. I could hardly walk in the room without having the overwhelming urge to vomit all over the place from the smell. On top of the fact that the progesterone was supposed to make me stop my period it can make you a little "weepy". That's a nice way of putting it in my book. The morning started off with someone across the room making a comment about how this was her 4th time with cancer........REALLY!?!? Apparently that made her the president of the club. Super. Is that now what I have to look forward to, counting down the years until I have to go through all this crap all over again? I am sure you can all see where the rest of that day went. It actually wasn't too horrible emotionally compared to Thursday. I did make it through the rest of Wednesday with the help of a lot of Ativan (anti anxiety) medicine from my favorite nurse Judy. I just couldn't even stand to see my IV drip the red nasty medicine down into me. I had to cover up the line with the blanket. Also on my list of "can't stands" at the moment are ice chips. I have to eat ice chips during that infusion to slow down the blood flow to my mouth to prevent mouth sores. I never thought ice could also want to make you vomit. Well believe me it can. Good news was that I don't have to have any shots for white or red blood counts. After I had finished with my treatment I all of a sudden developed a fever and started shivering really bad. They think I could have developed an infection and so got the shivering under control and pumped me up with some benedryl. I went home and went straight to bed. Again thank goodness for my family and Jon's parents being her to help out with everything.
Thursday I got up and went to hydration with my sister Toni feeling surprisingly not nauseous for the first time in days. Odd. But okay I'll take it. When I got to hydration of course the nausea kicked right in. Again, super. I did meet this really nice girl that just started her treatment. She is the same age as me (sucks for us) but hopefully will be nice to get to know. We also sat with another older woman who decided to tell us all about how she was dealing with breast cancer and her sister had breast cancer and then about how some sweet little 4 year boy she was related to was killed recently by chasing his ball into the street.....Enter "weepy"emotional psycho Eliza. I am sorry but a person can only take so many depressing stories. Why can't people tell nice stories. There are also plenty of those out there, aren't there? Enter my hero nurse with some more Ativan. I couldn't stop crying the whole rest of the day. I tried to get into the bath and my hot water heater had gone out from the wind the night before. Hmmm, so much for the one thing that might make me feel better. Mom mom, sister, and I loaded up the kids and went to her house so I could take a bath and they could keep my children away from their crazed mother. My sister ended up coming back to my house with me last night to stay over and we watched some friends episode. Those will really bring up your mood. They are pretty funny. I am glad to say that that day is behind me.
Today I had hydration again and have been feeling pretty horrible, although not "weepy". I hope everyone else is finding the humor in that word. Today has proven to be quite uneventful, which is fine with me. Jon got home this afternoon and also found out that he gets to do the same thing next week. Delightful. I took a nap this afternoon and have been pretty much just lying around all evening. Olivia went over to grandma Mondy's house to have a sleepover with my other niece Caylee. She was pretty excited. No big news for us this weekend, probably just trying to recooperate. Jon's birthday is on Sunday but we are going to go out and celebrate next weekend when I am feeling better. I don't have my breast MRI until next Friday and then I meet with my surgeon on the 8th. Hopefully I can move that up a bit so I can get a surgery date nailed down. My sister Amy is going to try and fly out to help when I have surgery. Well that is about all the excitement I can handle for one week, so until next time.....
Wednesday, January 10, 2007
Wed Jan 10th
Otherwise I have just felt pretty tired and don't have much energy. My sister Toni has been here since Christmas to help out and it has been awesome. She comes over everyday and helps with the kids, laundry, or whatever needs to be done. We took the kids swimming yesterday at the Greeley family fun plex. It has a park area in the kids pool that has water squirting out of the equipment. They also have a lazy river pool. It was pretty fun for the kids. We had another round of snow last Friday and Jon couldn't make it to work. We are supposed to have snow for the next couple days again. The snow still hasn't melted here from our first huge blizzard before Christmas. It has been interesting trying to navigate around the neighborhoods.
My sister in law Brandy had her surgery yesterday to remove the tumor that was growing on her kidney. They ended up removing the mass and also removing the kidney. They will get the biopsy results back tomorrow. Hopefully everything is fine with her. I posted some more pictures of the kids and some other misc pictures from over the last few weeks on my snapfish link.
Ladies, it is also buddy check 9 day yesterday so everyone remember to do your self breast exams. Hope everyone is doing well!!
Tuesday, January 02, 2007
Tues Jan 2nd
It is official, I have lost all but one of my fingernails in the last week. That's hot, as Paris Hilton would say. I know, I would say back! I have really underestimated the convenience of having fingernails for pretty much my whole life. It makes things like scratching almost impossible. My hair is also growing back on some parts of my head. Yes, I have lost hair pretty much everywhere else on my body. Also hot! I am still torturing myself by shaving my legs at least once a week, even though I don't need to. I don't know what to say, except it helps me to feel normal. Besides I bet if I looked really closely I could find a hair or two there that needed to be shaved.......At least that is what I am saying to myself to justify the extra time and energy in the shower. Why bother checking, I am sure they are there. Right, moving on....... I am still feeling nauseous on and off through the day, so I am still taking my anti-nausea meds and trying to take it easy. My sister Toni is here for almost the whole month to help me out and we did all sorts of errands today and then relaxed for the afternoon. I have spent the last few days researching this new procedure that they are wanting to do for surgery. It is called wire localization and I explained it a bit in my last post. After reading more about it I have to go into the radiologist and have the wire placed before the surgery is done, meaning I am not under general anesthesia for it. If you remember my nightmare biopsy story with the radiologist you will understand why I have been taking my anti anxiety meds for the last 48 hours freaking out about the fact I have to be awake for yet another "minor procedure" as they would put it. Needless to say I am NOT excited about this but am still trying to weigh the pros and cons of everything. I go in for Herceptin tomorrow am. (wasn't I just there???) I feel like I need to start paying rent at the doctor's office. Although if it costs what they are charging me for chemo by the hour, it better be the Ritz. Speaking of which, I might put a suggestion in the box of my insurance company that they should start sending their patients on vacation to help relieve the stress of serious illnesses. I am sure it doesn't cost any more to go on vacation for a week than some of the out of control prescription costs!!
Friday, December 29, 2006
Fri Dec 29th
There were a few people that were asking me about my port, so I thought I would take a picture of it....



Monday, December 25, 2006
Tues Dec 26th
I received some bad news on Sunday about someone I see at Chemo every now and again. Randy was 16 and diagnosed with leukemia and then found out last month that he had relasped and could do nothing else to treat his cancer. He passed away on Saturday night. He was always so happy. It is so sad that he was so young and his life was claimed by this horrible disease. I wish his family peace during this time.
It was a white Christmas this year and that is pretty exciting. Haven't had one of those in a few years. I have really enjoyed that it feels like winter outside. We had someone do the 12 days of Christmas for us this year which was pretty fun. For those of you unfamiliar with this someone leaves little goodies for you on your door starting with 12 days before Christmas every night that correlates with the song the 12 days of Christmas. The kids had a fun time looking outside to see what was left at the door.
My sister Toni and her husband Doug were still able to make it here on Friday from Salt Lake and it has been fun to have all my brothers and sisters here. Doug shaved his head for me a few days before they got here. They were going to shave their dog Buddy's head too. That would have been hilarious. Toni is taking a leave of absence from work to help me out for the next month. She will stay through the 25th of January and my last bad treatment will be the 17th so that will be a huge help for me. What a great sister!
Christmas day we got up and headed straight for my parents house. Santa knew we were going over there so he dropped off all of our stockings over there...(pretty smart guy, less for mom to keep track of Christmas morning) Like I mentioned earlier all of my siblings and their spouses and families were at my parents house this year so we had a house - full. It was awesome. 13 adults and 10 kids. I loved it. Presents everywhere and all sorts of commotion. I can't think of anywhere else in the world I would have rather been. My sister Toni had bought these "bald wigs" for everyone and we took a family picture with all the baldies....
Today I just hung out around the house trying to get all sorts of little things done around the house before I feel like bologna for the next week. My sister Amy came over and helped me take down my Christmas tree and go through some baby clothes that I wanted to get out of storage. Yeah, lots to pass on or take to good will and get out of my basement. Also nice to have my house back to normal. My sister Toni and her husband Doug took Olivia and my other nephew Cole sledding this morning. This has become one of her favorite things and has already been twice with Toni since she has been here. Jon installed my Christmas present in my car (some IPod remote thing). Looks pretty cool and I am excited to use it. Wednesday, December 20, 2006
Wed Dec 20th
Friday, December 15, 2006
Friday Dec 15th
I went into do my Herceptin on Wednesday and that only took about an hour which is a nice switch from being there several hours on the regular treatment days. I also went down to the airport with my Mom and Dad to pick up my sister Amy and her kids. It was great to be able to see them.
Monday, December 11, 2006
Monday Dec 11
The bone pain is still ever present. I feel like I was hit by a train. My lower back (pelvis) is still the most uncomfortable but my ribs, shoulder blades, and bottom of my skull all hurt also. The nausea still comes in waves but it hasn't been constant. The nurse said that the bone pain can last up to 6 days so hopefully we are getting into the last few days.
On Saturday we had Jon's aunt and uncle John and Clara over for the afternoon to exchange gifts. They brought us a yummy honey baked ham for dinner and we really enjoyed getting the time to visit. My sister Amy and her kids are flying into Denver on Wednesday and will be here for a few weeks. We are so excited to see her.
Friday, December 08, 2006
Friday Dec 8
Wednesday I went in for my "FEC Chemo Cocktail" as us chemo regulars refer to it as. I was able to avoid my cytoxin headache this time by having that medication infused slower so that was one good point. My port still is tender and hurt somewhat to be accessed even though I had my emla cream on it so I opted to leave it "tapped" to go in for hydration on both Thursday and today. I wonder if that stupid thing will ever not bother me?? The downside to Chemo was my blood counts White count is at 3.5 and Red count is at 4.05. Since normal range for white starts at 4.1 I had to plan on taking the dreaded Neulasta shot the following day. Darn it! They give my body time to take on the Chemo for a day before the cells start reproducing and then give me the Neulasta shot the next day to start producing more White cells. My Red counts were down also but they didn't seem to be as worried about them. The rest of the Chemo process was fairly non eventful.
I also had an appointment with Dr. Medgeyesy yesterday. I just love her. I can't help but think I won the lottery in being led to this woman. She still wants to consult with my surgeon Dr. Chiavetta more about my options for surgery but would recommend me still doing a mastectomy on the right side. Due to not enough evidence of the way a tumor shrinks they are not sure if microscopic cancer seed cells would still be laying on the outer edges of where the tumor started out. She explained that if I were 60 and we were finding this she would feel that going in and trying to do a lumpectomy in the area where the breast clip is currently located along with a partial removal of lymph nodes under my arm would be a possibility and get me through another 20 years. Since I am so young she said if it were her she would elect to do the mastectomy. From her explanation of the "shrinking" process I feel pretty confident in saying that I concur with her opinion. (another movie line from catch me if you can) I still have questions about whether or not it is a good idea to go ahead and do a bilateral mastectomy since I still do I have a somewhat higher probability of getting cancer again on the left side but need to get some other questions answered from my surgeon, plastic surgeon, and also insurance company first and foremost. This crap ain't free :-) You are always having to get permission from someone unfortunately. I feel a little more clear about the path we are headed down for surgery but not any less anxious about it.
The rest of my day on Wednesday was pretty rough. Lots of nausea, but no throwing up. Thursday I went in and did hydration in the morning with Jon and Olivia. Olivia has been asking since day one when she gets to go to the doctor with me and since this way hydration and takes just over an hour and Dad came with us I thought it would be a good day for her to go. She brought her "church bag" and read books and colored with dad. She got to meet the nurses at the office and also hang out with Lanie and Karin again. Yesterday was Karin's last day of chemo, and Lanie finished her chemo about 2 weeks ago. YOU GO GIRLS!! Of course we took some pictures and I posted them up on the snapfish link on the side of the page that says "Eliza's Pictures". I also had to get that Neulasta shot yesterday. Olivia said "Don't worry I will hold your hand mom." Which she soon regretted when I was squeezing all her fingers together. Whoops. Those shots hurt though, darn it. I think she had a good time with her dad there to entertain her and I knew her curiosity was getting the best of her wondering what I did at the doctor's office all the time. Thursday was more of the same experiencing heavy nausea but no throwing up and my pelvis started to hurt. My mom did the oils on my feet and I was so relaxed I went right to bed a little after 9pm. Unfortunately my son was up about 6 times between the hours of 2am and 4:30am. What a weirdo. He kept waking up screaming like he was having bad dreams and then he decided that he had a cough, so I had to get up and get him cough medicine. Then I think he was just mad that he was awake and couldn't get up and play so he just sat in bed and yelled until he fell back to sleep. That left me laying in bed awake on and off trying to keep from laying on the "tapped" port and then having Jon roll into bed at about 5:30 or so. This working nights bologna is not the fun route to go.
Hydration again today at 10:30 coupled with a serious dose of Ativan (for nausea). The Merry Maids came by to do my bathrooms and kitchen, which has been a godsend. I get 2 certificates a month to use at participating providers for Hope Lives! a support group in Fort Collins and I use both of them for cleaning my house. I love it. It takes so much energy to do that kind of stuff and it's so nice to leave and come home to a clean house. I also started taking my pain meds for bone pain this afternoon. The pelvis pain is well underway. I was warned this would probably be the first to start to ache since it is such a large bone.
I have to say thanks to everyone that helped us out this week from dinners, to watching kids, doing laundry, wrapping my Christmas presents, running kids around, and calling to check in. You guys are awesome, and I wouldn't be able to do make it without and you!!
Monday, December 04, 2006
Mon Dec 5th
Also my bruising fingernails have now shown signs of falling off. Both my pointer fingers are working their way to about 1/2 way hanging on and the other ones aren't far behind that. Nice.... So I guess those dreams of keeping my fingernails are also going to be shattered. They don't really hurt, they are just tender. But they look awful. I am going to start wearing hats and gloves both. There isn't much that is fun about this unfortunately. I guess the whole idea of having a horrible week and then 2 good weeks is not realistic. For now I will have to say a horrible week and then 2 mediocre weeks.
I am already due to have my next FEC treatment this Wednesday so back to my nasty week without having very much normalcy since my previous treatment. DANG!! We put out all our Christmas decorations yesterday and put up our Christmas tree. I just love this time of year. I have been listening to Christmas songs every change I get and I love the smell of the tree in the house. I could do without the pine needles but I suppose that is just a part of it unless you want to break down and buy a fake tree. (which Jon refuses to do) Maybe I can get one on an after Christmas sale.
We also found out today that my sister-in-law Brandy that just had the baby still hasn't been released from the hospital due to her high blood pressure. She had the baby last Tuesday. Yesterday they decided to run some tests and have found that her kidney is 4 larger than normal. They will be doing some blood work and other tests to find out what exactly is going on later today. Let's hope that she is alright, adjusting to having a new baby is enough to deal with.
Thursday, November 30, 2006
Thur Nov 30th
My brother Ethan and his wife Brandy had their baby yesterday morning at 3am via C section. Isis Kason is his name and he was 5lbs 8oz. Tiny baby. I think we are going to try and make it over to visit him today at some point. Last I heard he was in the NICU getting some help breathing but he was 4 weeks early so I guess that is to be expected.
My kids loved the snow yesterday and they all got dressed up and played for a little bit. The twins only lasted about 10 min outside since it was so cold. I don't think it got above 20 here yesterday. BRRRR!! I will put some pictures on my link of them. I love the snow, I don't think it snows near enough.
Yesterday I went in to do my Herceptin in the blizzard yucky weather bright and early. I had a stuffy nose on Tuesday when I went to bed and has developed into a cold, but no sore throat or fever so that is good. When I walked into the office I dropped my new glasses and the lens fell out of them and then I remembered that I forgot to put my Emla cream on my port. DARN!!! I have never forgotten to do that and I knew it was going to hurt.....and it did, bad. I feel like such a baby but my port access point was still sore from being accessed 5 times last week so I think that made it even worse. I won't ever forget to do that again. My blood counts are also very low this week, both red and white which also explains why I have a bit of a cold and am exhausted. Everything else yesterday went by fine and no side effects with the Herceptin so I feel okay besides the cold and not having any energy. But at least I am not hanging over the toilet.
My mom finally got her juicer and I have been having carrot/apple juice a few times a day. It is supposed to be good for your blood, so hopefully that will help. Also still continuing with the essential oil massages. Hopefully between all that I will have better counts next week and keep avoiding taking the Neulasta shots.
Tuesday, November 28, 2006
Tues Nov 28th
Otherwise I am feeling pretty good. Actually a bit normal, which is nice. Jon and I had a great time this weekend celebrating our anniversary....I can't believe we have been married for 5 years. We went and did some Christmas shopping at Flatiron's and then went and saw A Christmas Carol at the Denver Center for Performing Arts. We have never done anything like that before so it was a lot of fun and a great play. Lots of singing, dancing, and it was funny at parts as well. We also stayed up in Denver overnight without the kids. It was great to be just the 2 of us. My parents and my sister Heater split up my kids and kept them for us. Did I mention it was GREAT!!
Tomorrow I will go in and do my Herceptin infusion and hopefully it will be straight forward and have no problems. My mom's birthday is tomorrow and she is going with me, fun birthday for her, but she insisted. Love you momma, Happy Birthday!!